FBのオーストラリア発達障害のとあるママが、シェアしてくれた文章です。

素晴らしいと思ったので許可をいただきシェアします。

(原文で長いし読みづらいです)

Autism in our life 

Autism is isolating. 

Autism is tiring 

Autism is relentless. 

Autism is trying to console your child for hours at night over something they can’t even explain

Autism is trying to explain to your child at midnight that the person that said ‘we have a big job to do tomorrow’ was actually being sarcastic and you don’t have to actually fix the world 

Autism is watching your child go into a complete meltdown over an unexpected noise or the fall out after a fire drill

Autism is trying to explain to your child that I’d much prefer you to chew on a chewy then the car door or every single pencil you own, screwdrivers or toys

Autism is watching your child pull every bit of clothing out of their draw because all of the seems are to scratchy or they press on their skin ever so slightly or they are just plain itchy

Autism is knowing that most places have certain smells that can trigger hyperactivity or anger

Autism is trying to get your child to eat something more than chicken nuggets 

Autism is having to check menus before saying yes to go to dinner somewhere because heaven forbid they don’t have the garlic bread they eat

Autism is saying no to going places because you know the noise and chaos will turn the day and night into a nightmare 

Autism is meticulously planning family outings and spending them negotiating and walking on egg shells so everybody can have a good time and we don’t have to leave early

Autism is listening to others suggest that if your child had a good belting it’d fix them (put yourselves in a child’s perspective being asked not to hit people but receiving smacks to ‘adjust a behaviour’

Autism is seeing your child trying their hardest socially but not understanding the normal reciprocity 

Autism is watching your child be excluded from activities 

Autism is watching other parents wave goodbye to their child at the school gate and wish them ‘to have a good day’ and in the meantime gritting your teeth because you can see the look in your child’s eyes that somethings not right

Autism is watching children give their parents hugs in the afternoon while our little one is ready to punch on

Autism is late nights, listening to your child that cannot sleep

Autism is having very blunt fashion advises!

Autism is appointments, meetings and constantly trying to be one step ahead to advocate for your child. 

Autism is seeing patterns in things we never knew existed 

Autism is listening to the same you tube clip over and over again and watching your child enjoy it with the same excitement countless times

Autism is getting excited if your child comes close to putting a new food near their mouth or even being receptive of trying it

Autism is knowing really, really random facts

Autism is celebrating the tiniest of wins because for us they are a sign that all of the hard work may be helping 

Autism is having an endless amounts of appreciation for those that check in to see how you are, those that put themselves in the firing line with you on the bad days and still smile at the end. 

Autism is knowing the endless value of a good therapist, teacher, teachers aide; the ones that go the extra mile to help unlock the ‘secret code’ to your child. The ones that know that having a good day, a small success or positive experience means a peaceful night at home. THANK YOU!

Autism is the tears of joy, frustration, grief and the not knowing or what’s next. 

Autism is having a tour guides to a whole new world 

Autism is teaching your child in the words of Temple Grandin, that they may be ‘different but not less’

オーストラリアの発達障害のママ達のFB。

泣いたり、腹立ったり、笑ったり、

時には昼間からやってらんねぇ、

とワイン飲んだり。

一人一人違うから答えは違うんだけど、

だれが悩んでいたらコメントがたくさん来て、

中にはアドバイスや経験、

中にはただのビッグハグ、

時に笑える写真があったり、

愛しい我が子の今をシェアしてくれる。 

我が子がAutismと知ったら苦悩の数だけknowledgeのチャンスと小さな発見、進歩という幸せをもらっている“

気づくまでは割と大変だったけど、今はなんとなくいいたいことがわかる。

毎週やってきてた壁を手探りで登った。こえるまではご飯も喉は通らないけど、乗り越えたら週末が来てほっとした。

とりあえず…

あともう少しでやすみ！

自宅待機から解放されるぞー(o^^o)